School and bullying
A child with cystinosis may come across as being different and so may draw the attention of classmates. While your child may never be bullied, it's important to know it may happen and why your child may become a target.
Most bullying likely comes from a lack of understanding of cystinosis and what it means to live with a lifelong disease. So, education is key. Talking to teachers and other school staff can help them—and your child’s classmates—understand your child's situation. Knowing that there are adults who can help may reassure your child when facing social issues. Educating your child may help, too. Knowing what to do if bullying occurs can help your child feel more comfortable and confident.
Help teachers and school staff understand the facts about cystinosis. Download this brochure and print it out to share in school.
How cystinosis may make your child a target
Some things about cystinosis that may cause bullying at school include:
- Slightly smaller than average height or weight
- Unable to join in sports, recess, and physical education
- Sulfur smell on the breath or body from medicine
- Need for sunglasses inside because of light sensitivity
- Missing classes for doctor visits or feeling sick
If you suspect your child is being bullied at school, contact their school administrator to let them know how they can help.
