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Question 1
Cystinosis is a rare, genetic disease that results in a buildup of cystine, an amino acid, inside cells.
Great job, you got that right!Nice try, the correct answer is True.The buildup of cystine leads to the formation of crystals which can cause damage to nearly every cell and organ in the body. Signs of damage usually start in the kidneys and eyes, but then develop differently in each person.
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Question 2
How does Michael’s cystinosis change the way his body works?
Great job, you got that right!Nice try, the correct answer is, all of the above.Michael’s cystinosis can change the way his body works in a lot of ways. It can cause his eyes to feel the light more than other kids’ eyes do. It can also make him feel the heat more than other kids. It can make Michael very thirsty and sometimes it makes him tired.
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Question 3
Why does Michael take a water bottle with him to school?
Great job, you got that right!Nice try, the correct answer is, cystinosis makes him very thirsty and he needs to drink a lot of water.Cystinosis makes Michael’s mouth feel dry and it can make him very thirsty. So, he takes a water bottle to school. He can fill it up with water any time he gets thirsty. When you have cystinosis it can make you want to drink water many times a day.
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Question 4
Michael’s cystinosis medicine sometimes changes the way his breath smells. What does he do when that happens?
Great job, you got that right!Nice try, the correct answer is, he uses mints.Cystinosis medicine can make Michael’s breath smell bad. When it does, he uses mints, and sometimes gum, to make it smell good. The medicine can also cause his body to smell bad.
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Question 5
Michael wears sunglasses even when it’s cloudy outside
Great job, you got that right!Nice try, the correct answer is True.Michael has cystinosis and wears sunglasses because his eyes feel the light more than other kids’ eyes do. Sometimes people with cystinosis even have to wear sunglasses indoors.
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Question 6
Because Michael sometimes gets tired during the day, he puts his head down on his desk and takes a nap
Great job, you got that right!Nice try, the correct answer is False.Because Michael’s cystinosis sometimes makes him tired during the day, he is allowed to have snacks at his desk (lucky him!) because they help him have energy.
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Question 7
What is Michael’s favorite snack?
Great job, you got that right!Nice try, the correct answer is, French fries.He especially likes salty snacks, like pretzels and potato chips, but french fries are Michael’s favourite snack! Michael could snack on a banana if he wanted to because they are also a very good source of energy.
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Question 8
How do you pronounce "Cystinosis"?
Great job, you got that right!Nice try, the correct answer is, sis-tin-OH-sisCystinosis is pronounced sis-tin-OH-sis.
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